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The Greginator

Gregory's odyssey with Juvenile Myelomonocytic Leukemia.

Created on 2009-03-03 02:48:10 (#18917289), last updated 2009-12-30

880 comments received, 199 comments posted

Basic Info
Name:thegreginator
Birthdate:1971-09-04
Location:Spokane, Washington, United States

Contact:

thegreginator@live.com
Bio
Greginator 048 copy
Thanks for stopping by!  Gregory is four years old and undergoing an Odyssey with  Juvenile Myelomonocytic Leukemia.  JMML is an extremely rare leukemia, which affects Gregory's production of healthy platelets, red cells and white cells.  Basically his entire blood producing system.  Our Odyssey began on February 23rd when he was admitted for flu symptoms and dehydration.  We are currently in Seattle, WA under the care of Seattle Cancer Care Alliance (SCCA).  Gregory's only course of treatment is a Bone Marrow Transplant, also known as a Hemotopoietic Stem Cell Transplant (HSCT).  On April 21st we received that magic phone call, notifying us of a perfect 10/10 transplant match.  We arrived in Seattle on Monday, May 11. We were admitted to Seattle Children's on Monday June 1, to begin pre-transplant conditioning.  (AKA:  Heavy Duty Chemo).  Gregory's transplant began at 4:10am on Thursday June 11, 2009.  We were discharged after nine long/short weeks.  We are out-patient in Seattle and hope to be HomeHome by the end of September.  After a minor set-back, we were able to return to the Spokane area on Sunday, October 11.  Gregory and I are staying at our family's place on the water, for a few weeks.  The house is not quite ready and we want to be sure that the siblings are well.  We will be returning home, soon.

You do not need to have a LiveJournal account to comment.  You can comment anonymously and simply sign your name.  You can received journal update notification through CaringBridge.  There will be a link at CaringBridge for every entry at LiveJournal.  Simply click on that link and it will bring you to the entry here. 

I am also on FaceBook (Mindi Finch) and Twitter (MagnificentMndi) .  Sometimes brief updates are available there, before they make it to my LiveJournal.

We have had numerous requests for our address.  While love, support and encouragement is directed at The Greginator, the siblings are of equal importance.  If you would like to send somthing to Curtis and AnnMarie, we would be forever grateful.  Here is our contact information:

The Greginator ~ Gregory Bibb
Curtis Bibb
AnnMarie Bibb
PO Box 31282
Spokane, WA  99223

Curtis is 10 and in the fifth grade.  AnnMarie is 7 and in the second grade.

Thank you to everyone who has/will touch our lives.  Everyone of you will forever be a part of our families history. 

The Odyssey Thus Far from MindiTheMagnificent on Vimeo.

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Interests (139):

activism, agnosticism, amadeus, amigurumi, anais nin, ancient history, annmarie, asd, asperger's syndrome, aspergers, astrology, autobiographies, ayelet waldman, baking, black tea, blasts, blood counts, bmt, board games, bone marrow transplant, bone marrow transplants, camelot, cancer, card games, chemo, chemotherapy, childhood cancer, cm, co-sleeping, coffee, community building, compassion, conservation, cooking, coupling, courage, creative memories, curtis, daddy, dancing, david bowie, democracynow.org, depeche mode, diana gabaldon, drag queens, earth, ecology, education, education reform, elizabeth i, environment, erasure, feminism, fhcrc, fred hutchinson, frogs, gary zukav, germany, glbt, global warming, going green, hedwig, hematology, henry viii, hickman catheters, history, hospice, iep, jmml, juvenile myelomonocytic leukemia, karma, king arthur, knitting, learning lots, leukemia, lgbt, liberal, lotr, love, mandalas, margaret cho, merlin, mike meyers, mommy, montessori, monty python, morrissey, music, musicals, nerds, netflix, new order, new wave, nick junior, nip/tuck, nursing, omd, oncology, outlander, peace, personal growth, peter murphy, pinups, plaid, play doh, politics, pro-choice, project runway, queer as folk, quick recovery, reading, recycle, rmhc, rob brezsny, ronald mcdonald house, scissor sisters, scrapbooking, seat of the soul, seattle cancer care alliance, spongebob squarepants, sticks & string, the beautiful south, the greginator, the mists of avalon, the roman empire, the smiths, the tudors, thegreginator, tivo, v for vendetta, vargas, volunteering, warrior heart, west wing, womyn, wool, writing, yoinking interests from others,

External Services:

Windows Live ID thegreginatorLJ Messenger Status: offline
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