?

Log in

Previous Entry | Next Entry

Welcome

Greginator 048 copy
Thanks for stopping by!  Gregory is four years old and undergoing an Odyssey with  Juvenile Myelomonocytic Leukemia.  JMML is an extremely rare leukemia, which affects Gregory's production of healthy platelets, red cells and white cells.  Basically his entire blood producing system.  Our Odyssey began on February 23rd when he was admitted for flu symptoms and dehydration.  We are currently in Seattle, WA under the care of Seattle Cancer Care Alliance (SCCA).  Gregory's only course of treatment is a Bone Marrow Transplant, also known as a Hemotopoietic Stem Cell Transplant (HSCT).  On April 21st we received that magic phone call, notifying us of a perfect 10/10 transplant match.  We arrived in Seattle on Monday, May 11. We were admitted to Seattle Children's on Monday June 1, to begin pre-transplant conditioning.  (AKA:  Heavy Duty Chemo).  Gregory's transplant began at 4:10am on Thursday June 11, 2009.  We were discharged after nine long/short weeks.  We are out-patient in Seattle and hope to be HomeHome by the end of September.  After a minor set-back, we were able to return to the Spokane area on Sunday, October 11.  Gregory and I are staying at our family's place on the water, for a few weeks.  The house is not quite ready and we want to be sure that the siblings are well.  We will be returning home, soon.

Whew!  We finally moved back HomeHome in August of 2010.  Gregory is still undergoing treatment for Graft Versus Host and this could continue for years to come.  Trying to teach his new Immune System to not destroy his body.

You do not need to have a LiveJournal account to comment.  You can comment anonymously and simply sign your name.  You can received journal update notification through CaringBridge.  There will be a link at CaringBridge for every entry at LiveJournal.  Simply click on that link and it will bring you to the entry here. 

I am also on FaceBook (Mindi Finch) and Twitter (MagnificentMndi) .  Sometimes brief updates are available there, before they make it to my LiveJournal.  My LiveJournal Twitter Feed can be found here:  magnificentwit 


Thank you to everyone who has/will touch our lives.  Everyone of you will forever be a part of our families history. 


The Odyssey Thus Far from MindiTheMagnificent on Vimeo.
mindithemagnificent. Get yours at bighugelabs.com/flickr

46 Mommas Shave for the Brave

Promote your Page too

Tags:

Comments

(Anonymous)
Mar. 31st, 2009 08:51 pm (UTC)
Today, at Starbucks
Dear Mindi,

You stopped in to the Starbucks at 29th today and had a brief chat with Cindy. I was the barista nearby, and couldn't help but to overhear the tragic news that your little guy has a rare form of leukemia. I was literally taken aback for a moment because I too have 3 children, ages 12, 7 and 5...and I couldn't imagine what you must be going through at this time. My heart was aching for you and your family. I copied down the info on the little card you gave to Cindy and thought you wouldn't mind if I stopped by your page. I immediately wondered if there was something I could do to help. I know there is a national bone marrow registry, but I don't know how to access it and get my blood typed for the program. I'm sure you know more about it than I do, so I was wondering if you might be able to email me some information on how to go about doing that. If I'm not a match for your son, maybe I'll be a match for someone else who desperately needs a bone marrow transplant. My name is Kelly and my email is: kellyasan@comcast.net ... I am keeping your family in my thoughts...

Kelly

Profile

www.46mommas.com
thegreginator
thegreginator
Powered by LiveJournal.com
Designed by Lilia Ahner