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Thanks for stopping by!  Gregory is four years old and undergoing an Odyssey with  Juvenile Myelomonocytic Leukemia.  JMML is an extremely rare leukemia, which affects Gregory's production of healthy platelets, red cells and white cells.  Basically his entire blood producing system.  Our Odyssey began on February 23rd when he was admitted for flu symptoms and dehydration.  We are currently in Seattle, WA under the care of Seattle Cancer Care Alliance (SCCA).  Gregory's only course of treatment is a Bone Marrow Transplant, also known as a Hemotopoietic Stem Cell Transplant (HSCT).  On April 21st we received that magic phone call, notifying us of a perfect 10/10 transplant match.  We arrived in Seattle on Monday, May 11. We were admitted to Seattle Children's on Monday June 1, to begin pre-transplant conditioning.  (AKA:  Heavy Duty Chemo).  Gregory's transplant began at 4:10am on Thursday June 11, 2009.  We were discharged after nine long/short weeks.  We are out-patient in Seattle and hope to be HomeHome by the end of September.  After a minor set-back, we were able to return to the Spokane area on Sunday, October 11.  Gregory and I are staying at our family's place on the water, for a few weeks.  The house is not quite ready and we want to be sure that the siblings are well.  We will be returning home, soon.

Whew!  We finally moved back HomeHome in August of 2010.  Gregory is still undergoing treatment for Graft Versus Host and this could continue for years to come.  Trying to teach his new Immune System to not destroy his body.

You do not need to have a LiveJournal account to comment.  You can comment anonymously and simply sign your name.  You can received journal update notification through CaringBridge.  There will be a link at CaringBridge for every entry at LiveJournal.  Simply click on that link and it will bring you to the entry here. 

I am also on FaceBook (Mindi Finch) and Twitter (MagnificentMndi) .  Sometimes brief updates are available there, before they make it to my LiveJournal.  My LiveJournal Twitter Feed can be found here:  magnificentwit 


Thank you to everyone who has/will touch our lives.  Everyone of you will forever be a part of our families history. 


The Odyssey Thus Far from MindiTheMagnificent on Vimeo.
mindithemagnificent. Get yours at bighugelabs.com/flickr

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Comments

( 56 comments — Leave a comment )
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<<[1] [2] >>
(Anonymous)
Jul. 10th, 2009 09:54 am (UTC)
Mindy--I think about you and your family always. What an amazing mother you are.
Love,
Linda
(Anonymous)
Jul. 19th, 2009 11:55 pm (UTC)
You are amazing
You are in the heart and prayers of some many people. You and your little boy have changed lives more than you know. When you wrote about grace, well you just totally understood God's will for all of us. Keep on fighting.
(Anonymous)
Jul. 21st, 2009 05:53 am (UTC)
This song by Rascal Flatts got me through some pretty rough times. I hope it brings you as much relief.

Stand lyrics

You feel like a candle in a hurricane
Just like a picture with a broken frame
Alone and helpless
Like you've lost your fight
But you'll be alright, you'll be alright

[Chorus:]
Cause when push comes to shove
You taste what you're made of
You might bend, till you break
Cause its all you can take
On your knees you look up
Decide you've had enough
You get mad you get strong
Wipe your hands shake it off
Then you Stand, Then you stand

Life's like a novel
With the end ripped out
The edge of a canyon
With only one way down
Take what you're given before its gone
Start holding on, keep holding on

[Repeat Chorus]
Ooohhh
Then you stand yeahhh

Everytime you get up
And get back in the race
One more small piece of you
Starts to fall into place
Ooohhh

[Repeat Chorus]
(Anonymous)
Sep. 18th, 2009 04:43 pm (UTC)
Misunderstood
I now feel I need to leave a comment. In my reading of the comment made about coming home bald, I hope the writer understands that the reason behind Mindi's feelings is not only pride that her beautiful and brave son has survived the incredible odds but that when she returns homehome when she is with the public they will recognize what he has been through and respect the distance needed to protect his health without Mindi having to be hyper-vigilant at all times. Wouldn't it be wonderful if they both could return with a sense of peace to enjoy being homehome. With much pride, Mom
(Anonymous)
Oct. 16th, 2009 01:19 am (UTC)
I have been keeping you in my prayers from the beginning, just wanted to share this with you!.
ttp://www.youtube.com/watch?v=VgEDOOOi2r4
(Anonymous)
Oct. 25th, 2009 05:56 pm (UTC)
Thank you!
Mindi, you are an awesome person and an awesome mom. I use that word in its true original sense: Awesome!
Thanks for keeping us all informed and putting your thoughts into coherent writing so that we can all share in your joy, misery, frustration, love and devotion... etc. Your journal inspires me to be a better mom and a better person. I wish I could have your strength. So, thank you!
(Anonymous)
Nov. 2nd, 2009 07:07 pm (UTC)
RN
Hi Mindi,

You go for it Girl. It sounds like the prefect fit for you. It isn't like you haven't seen the in's & out's of what it is all about these past few months.
I'm excited that you are focussing on the future, & in such a helping field. I'm glad Gregory is doing better. Will be glad when you can be back together as
a family.
Love & Prayers,
Margie & Les
(Anonymous)
Dec. 21st, 2009 05:20 am (UTC)
Wishing you Well for Wednesday
Hey Mindi, haven't written for awhile but I check your site nearly every day and you are all never far from my thoughts. I'll be sending extra positive thoughts on Wednesday. I hope it all goes well and is a step toward making things a little easier for you and Gregory.

Good Luck
Lori R.
(Anonymous)
Dec. 23rd, 2009 05:09 pm (UTC)
Love that's all there is!
I can't tell you how much I hope things go well today. I hope it
will be a turnabout for Gregory's recovery. Remember so many people love you guys and pray for daily. Be strong again...

Merry Christmas and Love

Barbara and Dennis
wanderer_avaxxx
Feb. 11th, 2010 12:33 pm (UTC)
Sayano-Shushenskaya Hydroelectric Power Station Catastrophic threat of ecology of Arctic regions and Northern America from Russia and Sayano-Shushenskaya HPS http://wanderer-avaxxx.livejournal.com/2495.html
(Anonymous)
Feb. 11th, 2010 12:41 pm (UTC)
I think that could be very interesting for you
I have recently come across a company that dedicates itself to helping children understand medical conditions like Leukaemia, through comic books and entertaining media. Because of the lack of medical resources out there for children, MediKidz educates children about health conditions in their language and at their level. These books have really helped my family and I, and I truly recommend you all looking it up at medikidz.com

My best wishes!!
(Anonymous)
Apr. 29th, 2010 04:33 am (UTC)
Be strong!
Hi! I'm from Brazil and I've found you by a comment that you left in 65RedRose blog. I just want to say that you are a great great great mother and God will not allow anything bad happen with Gregory. You have a beautiful family and when all this thing pass you all will be more and more united. God bless all of you and be strong! Kisses!
(Anonymous)
May. 13th, 2010 05:21 pm (UTC)
Missing you
Hey Sweet Lady, I am sure you are totally exhausted, just want to say we miss your postings and still think of you daily. Much Love, ph
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(Anonymous)
Oct. 15th, 2010 02:06 am (UTC)
JMML
I do understand. Our little grandson went through the same process with JMML. He is now five and in kindergarten doing fine. It is sooo difficult for the parents as each day you never know what is coming. You look back later and think, maybe I shouldn't have worried so much. But it is that worry that made you careful of each sneeze, each fever, etc and every cry. We never knew sometimes if our grandchild would survive the night.

It is emotionally exhausting as well as physically exhausting. Your other children will not say much, but they feel it as well. It is the price that everyone pays. Be sure that they get special time alone with you, because they are special. Even a card game, bake together, an UNO game and golf frisbee will make every one laugh and be "normal" for 15 minutes. and YOU go to a movie, a fun one, just to be alone once in a while! Love with our prayers...Someone who read your blog.
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